Parents' experiences of the transfer from pediatric to adult care for their adolescent or young adult children with chronic conditions : a systematic review protocol

Abstract

Review question/objective: The objective of this systematic review is to identify parents' experiences of adolescents and young adults (AYA) health care transfer from pediatric to adult care. 1. How do parents experience being prepared for the transfer from pediatric to adult care of their AYA with a chronic condition? 2. How do parents experience the event of transfer? 3. How does the type of chronic condition influence parents' experiences of AYAs' transfer from pediatric to adult care? Inclusion criteria: Types of participants: This review will consider studies that include parents of AYAs (adolescents aged 13-18 years and young adults aged 19-24 years) living with a chronic condition. No limit considering the AYA's type of chronic condition, as long the AYA it not under residential accommodation or institutionalized care. Phenomena of interest: This review will consider studies that investigate how parents of AYAs with chronic conditions experience and manage the AYA's transfer from pediatric to adult care. Context: Transfer from pediatric to adult care for AYAs.