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dc.contributor.authorRohde, Gudrun Elin
dc.contributor.authorSöderhamn, Ulrika
dc.contributor.authorVistad, Ingvild
dc.date.accessioned2019-12-10T11:42:02Z
dc.date.available2019-12-10T11:42:02Z
dc.date.created2019-03-12T18:08:51Z
dc.date.issued2019
dc.identifier.citationRohde, G. E., Söderhamn, U. & Vistad, I. (2019). Reflections on communication of disease prognosis and life expectancy by patients with colorectal cancer undergoing palliative care: a qualitative study. BMJ Open 9(3). 8. doi: 10.1136/bmjopen-2018-023463nb_NO
dc.identifier.issn2044-6055
dc.identifier.urihttp://hdl.handle.net/11250/2632467
dc.description.abstractObjectives Patients with colorectal cancer undergoing palliative treatment receive extensive treatment-related information throughout their disease trajectory. We aimed to explore the experiences of patients with incurable colorectal cancer while in palliative care and their reflections on the information provided by physicians and nurses. Our main focus was the patients’ thoughts about how information about disease status and life expectancy was communicated, from the first time that they were informed about the incurable nature of their disease through to postsurgery palliative treatment. Settings Patients with colorectal cancer receiving palliative chemotherapy. Research design We used a qualitative approach, and the data were analysed by qualitative content analysis. Participants 20 patients (34–75 years of age) were included in the study; 12 received first-line chemotherapy and 8 received second-line chemotherapy. Eleven patients were treated by oncologists, and nine were treated by junior physicians. Results Data-driven empirical analysis identified three themes: (1) inadequate information during the initial phase of the disease trajectory; (2) hope and information further into the disease trajectory and (3) personal, professional and organisational factors that influenced information and communication throughout the disease trajectory. Conclusion The participants’ experience of being told for the first time that they had an incurable disease was perceived as inadequate, while postsurgery palliative chemotherapy, physicians and nurses offered hope. The participants preferred customised information about their treatment and likely future prospects and physicians and nurses who took a holistic and compassionate approach focusing on their lifeworld. To be a sensitive, holistic and compassionate physician or nurse requires knowledge and confidence. To achieve this requires training and guidance at universities and in hospitals.nb_NO
dc.description.abstractReflections on communication of disease prognosis and life expectancy by patients with colorectal cancer undergoing palliative care: a qualitative studynb_NO
dc.language.isoengnb_NO
dc.publisherBMJ Publishing Groupnb_NO
dc.relation.urihttps://bmjopen.bmj.com/content/9/3/e023463
dc.rightsNavngivelse-Ikkekommersiell 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/deed.no*
dc.titleReflections on communication of disease prognosis and life expectancy by patients with colorectal cancer undergoing palliative care: a qualitative studynb_NO
dc.typeJournal articlenb_NO
dc.typePeer reviewednb_NO
dc.description.versionpublishedVersionnb_NO
dc.rights.holder© 2019 The Authorsnb_NO
dc.subject.nsiVDP::Medisinske Fag: 700::Klinisk medisinske fag: 750::Onkologi: 762nb_NO
dc.source.pagenumber8nb_NO
dc.source.volume9nb_NO
dc.source.journalBMJ Opennb_NO
dc.source.issue3nb_NO
dc.identifier.doi10.1136/bmjopen-2018-023463
dc.identifier.cristin1684285
cristin.qualitycode1


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Navngivelse-Ikkekommersiell 4.0 Internasjonal
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